Health minister seeks Rs 50L aid from CM for patient | Mangaluru News
Mangaluru: Minister for health and family welfare Dinesh Gundu Rao urged chief minister Siddaramaiah to release a special sanction of Rs 50 lakh to a patient from Sullia, Chandini GD., who is suffering from a rare disease.The minister stated in a request letter to the CM, that it would require more than Rs 50 lakh for the treatment of the 34-year-old Chandini, wife of Purushothaman C from Gandhinagar in Sullia. She is suffering from right atrial mass, hyper IGE syndrome with mast cell activation syndrome, dock 8 mutation seizure disorder, hypothyroidism, hiatus hernia with motility disorder. Since the treatment involves a huge cost, the minister requested the CM that it would be better if the finance department sanctioned the treatment cost.“Chandini hails from a poor family and she is suffering from a rare disease. There is no option to bear the cost of her treatment under health department schemes. A request to sanction treatment cost under Chief Minister’s Relief Fund was made. Accordingly, Rs 1 lakh was already released. Since the treatment of Chandini would require more than Rs 50 lakh, I request you to consider this as a special case and sanction the funds through the finance department,” Rao stated in his letter to the CM.MLC Ivan D’Souza brought to the notice of the govt during the legislature session about Chandini, in March this year. The MLC requested the govt to bear the entire cost of Chandini’s treatment. The health minister suggested taking Chandini to visit Indira Gandhi Institute of Child Health (IGICH) for advanced treatment. The treatment method is available under the National Policy for Rare Diseases (NPRD), according to the minister.Chandini, a dance teacher, underwent several surgeries, hospitalisations, and intensive care treatments for about 30 years.
